Thursday, July 24, 2008

the pump.

Ever since I was diagnosed four plus years ago, my grandma has made it her mission to send me every diabetes-related piece of information she can get her hands on. She's sent me emails about "exciting new developments in stem cell research!" (they never actually come to be), and newsletters from the Canadian Diabetes Association explaining the difference between type 1 and type 2 (sorry, grandma, but I already know), and carefully snipped newspaper articles about the disease's rising rate (I know I know I know). Her information for me has never been particular informative to me-- save, of course, for the time I read an article in one of her old Canadian Living magazines about a woman with type 1 who didn't control her blood sugars carefully enough as a teenager (ergh) and then drank too much as a university student (oh, fuck me) and then, due to resulting complications, ended up completely blind before the age of 30. That little bit of information did hit home, actually. I started bawling on my grandma's couch out of sheer fear.

So, I was surprised when this news release came out yesterday and my grandma wasn't automatically the first person to alert me about it. My mom, actually, was the one who called and woke me up and frantically told me to googlenews my disease. And there it was. And it changed everything.

I became a completely different person the moment I was diagnosed with type 1 on that June day four years ago. The switch was instanteous. My biggest accomplishments up to that point-- most likely my good marks or high school running career-- suddenly paled, and in time they meant even less. Managing this disease requires effort and attention every day, minute, second of my life. It's my full-time job, and my forever burden, and the most important thing I'll ever do, but it's also the thing most easily forgotten. I've had friends who took years to realize that I have diabetes, and some friends who probably still don't know. I'm always hiding just in the background, pricking my finger and wiping away the blood, stabbing my bare stomach with a needle beneath the veil of a table, frantically drinking down a bottle of orange juice in the checkout line at ValuMart to make sure my blood-sugar low passes before I reach the cashier. It's a full time job that I'm not allowed to take even one second away from, because everything I do right now determines what will happen to me later: if I don't keep my blood sugars under control now, there will complications waiting for me down the line. They'll be there. Just waiting.

I've always known that there was a potential solution out there, but I always discounted it. Well, not a "solution" as such, but a means to help keep my blood sugar levels under tighter control with the push of a button. The pump is an ugly, boxy little device that looks like a perma-pager and constantly delivers a dose of insulin to the individual via a needle inserted under the skin. Did I mention that it looks like a pager from the '90s? I know that this little beast can significantly improve one's ability to manage their blood sugar, but the fact that it has to be attached to the body at all times seemed a little off-putting to me. That, and the fact that a pump costs upwards of $5000, along with $200 for monthly supplies (none of it covered by my mom's drug plan). Being a poor undergrad student and future starving grad student, the pump has never even been a possibility for me. I was happy to dismiss its ugly appearance because I knew I wouldn't be able to consider it, at least not until I was a grown-up with a good job and benefits. But know, everything is different. Money is no longer an issue. Good health is the only thing that matters. I know that I'll always give my disease the care and attention it requires, but it's so wonderful to know that there are options out there to make it easier for me. The provincial government has sent down this wonderful (free) piece of equipment from heaven, and it is going to change everything.

This is my deus ex machina.

2 comments:

Anonymous said...

This is great news. It's good to see the Ontario government being progressive with preventative healthcare. Hopefully other provinces will follow our example.

I'm also glad you're updating this blog regularly. You're a painfully good writer.

lisa said...

i finally bit the bullet.

(this is lisa)